So this week we went to his regular pediatrician, his cardiologist, got his blood work done and had some therapy. Poor guy has been put through the ringer, but he did great! Dylan weighs 7 pounds 14 ounces ( Almost 8 Pounds ) still a little guy but he is growing. When we went to see his pediatrician she asked me to do some tummy time with him because he was favoring one side of his neck and we need to make sure the other side gets some strength too. We had already been doing this from what our therapist said because it will help his muscle tone in the long run. As I may have mentioned before down babies have a lower muscle town and it takes them a little longer to get strength to crawl, walk and hold there head up. So when we put Dylan down on the table our doctor could not believe how much already at 6 weeks our little man was holding his head up. She specifically said " Michelle I have down babies at 6 months that come in here and cannot even do what Dylan is doing" Go Dylan!!! He is our little fighter and is going to be a very strong boy. As far as Dylan's heart condition http://www.cincinnatichildrens.org/health/a/avsd/ his cardiologist was very happy with how he was doing. He listened to his heart and did not have any heart failure, which is what he refers to when the blood in his heart is pumping to hard which causes his oxygen and breathing to become faster and he does not have that. His heart rate was 130 which is just what it should be at this age even with out his heart condition. We have an appointment in 4 weeks to meet with the cardiologist again and will do another echo on his heart to follow up and at this point he wants to refer us to the surgeon at Choc and schedule to have his surgery in October. The doctor said that his heart is not that bad to have surgery at 3 months but defiantly feels that 4 months will be perfect.
I have known that this day will come but the reality of it has not set in. When the doctor told me that he will need to have surgery in October I just sat in my car after leaving his appointment and cried. I am so sad for him. I don't want to see him go through this. I wish I could go have the surgery for him. My heart hurts for him. I love him so much! We know Dylan will be in the best care of the doctors and they do these surgery's all the time. As much as I am dreading this day more then anything, I will be so glad it is over so we can move on and get him healthy and strong! With the love and support of our family and friends we will get through this. Dylan is a fighter and he will do great!
No comments:
Post a Comment